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Registries for Rare Diseases: Involve the Patient

Marshall L. Summar In a new interview with Medscape, Marshall L. Summar, chief of genetics and metabolism at Children’s National Medical Center in Washington, D.C. and NORD board member, talks about...

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Just Posted on Medscape: NORD Op-Ed for Medical Students on Importance of...

Sophia Walker, NORD Sophia Walker, a medical student and NORD volunteer, has written an op-ed piece on “The Importance of Rare Disease Education” that was published this afternoon on Medscape and is...

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NORD in the News: Medscape

Pursuing Elusive Diagnoses for Rare Diseases February 26, 2015 Read the article here 

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